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Abstract
Grant Number: 5R01HG001765-03 Project Title: INFORMED CONSENT TO DNA BANKING FOR RESEARCH
PI Information: Name Title MERZ, JON F. merz@mail.med.upenn.edu ASSISTANT PROFESSOR OF BIOETHICS Abstract: DESCRIPTION: The applicants will continue work on a consent form for a DNA bank at the University of Pennsylvania. Patients in the GCRC for other studies are invited to donate to the DNA bank; the investigators will use that population as test subjects for an improved consent process. They will use focus groups and then a "think aloud" protocol (a modified focus group) and prospective jurors as test populations. They will then randomize 2500 subjects, half of whom will use a consent process using vignettes, to see if that technique elicits more informed consent. Subjects will complete a questionnaire about the consent process, assessing their understanding of key issues.
Public Health Relevance:
This Public Health Relevance is not available.Thesaurus Terms:
DNA, genetic registry /resource /referral center, health science research, informed consent, tissue resource /registry
health care policy, health related legal
behavioral /social science research tag, health services research tag, human genetic material tag, human subject, interview, questionnaire
Institution: UNIVERSITY OF PENNSYLVANIA 3451 Walnut Street PHILADELPHIA, PA 19104 Fiscal Year: 1999 Department: MEDICINE Project Start: 30-SEP-1997 Project End: 31-AUG-2001 ICD: NATIONAL HUMAN GENOME RESEARCH INSTITUTE IRG: ZRG2